17April update

Friday
Family visited me as I sat on the settee all day on my laptop. I have started to write a blog and promote the UK transplant organisation on face book. If people reading this have web sites they can have a link from the UK transplant.org site directly linked to theirs and if people have shops they can ask for FREE promotional goods to display to promote the transplant list. Please do this if you can .

Saturday
yes went again to meadowhall ( regular Saturday occurance ) with my brother and his daughter, I went round in my chair with the oxygen on – this is the first time I have worn my oxygen around meadowhall. I don’t care anymore if people stare. Chloe sat on my knee all the way around . I felt so blessed that I could spend this time with her. If you haven’t got your family who have you got?

Sunday
Stopped in bed all day, read books and watched TV felt very weak. Very miserable day for me today. Enough said.

Monday
I’m so inquisitive that’s my trouble sometimes. I have just read an article about a woman that was on the transplant list for 2 years had 4 false alarms for transplants and then was taken off the list as she became too ill. She is now waiting to die. I must stop reading all these postings on the internet. Another totally miserable day for me , I am still fighting this infection.

Tuesday
I went online to read my diary in the star and crumbled into tears after reading of the sad passing of Michael who was waiting for a lung transplant. I know how they must have been feeling waiting for the transplant but can’t imagine what his fiancé and family are feeling now. It’s tragic. This has really upset me and my family and friends.
John Phoning me all day to make sure I’m ok. Friends and family also have been to visit just to keep my spirits up.
Hospital nurses phoned me to see if I was ok as they had also read the article.

Wednesday
Busy day today. The Worksop guardian newspaper has been to do an interview so they too hopefully can publicise the UK transplant register.
My friend visited me today and stopped for an hour whilst the interview took place. My friends at first2train and DPP have sent me a beautiful bouquet of flowers today to cheer me up as I have been a little upset and depressed. This always cheers me up.

Thursday
Felt much better today, bathed washed hair, dressed and i even made tea –tuna pasta bake. It would probably take you 10minutes it took me 1.5 hours. I did feel id achieved something. I started to write my university assignments. I have to have them all finished for 10th may. I have got to get my brain back into gear. I feel that my infection has nearly gone and I have started to feel much better now.