The past week

Sunday
Stopped in and watch TV all day. Dad came round and had bought me a present – Perfume. It’s fabulous. I absolutely adore perfume and make up even though I don’t wear my make up very often now , it has just become another part of my life which has been taken away by this hideous disease . I can’t do the nice things anymore without being put under tremendous stress and fatigue.
John made me laugh he tried to get in the single bed with me and go to sleep ( I hate being on my own downsairs )
After about 4 minutes I just cracked up , I couldn’t move we not young kids any more single beds aren’t designed for 2. He keeps me smiling .


Monday
Had a really awful day today. I’ve been in immense pain and really depressed. I can’t tell you why as nothing has changed but I just couldn’t stop crying. No matter what anyone said I just burst into tears.
I realised today that I don’t sing any more. I was forever singing to the radio, TV; I can remember the last time I did that. Now that’s got me up set.

Tuesday
Janet helped clean today, Mum is helping prepare all our meals now to give john some help and respite. A dear friend called Paul came round to see me and kept me laughing.
Daniel and Abbie have been great over the past weeks so kind and thoughtful . They are going through so much yet they are keeping it together and doing well and school and work. I am so proud of them.

Wednesday

Went for an outing to crystal Peaks today. The weather was warm, sun shining and I thoroughly enjoyed being out in the fresh air.
My main aim was to get my hair washed and blow dried at the hairdressers but alas they couldn’t fit me in. I always come on the off chance of getting an appointment as some days I don’t feel well enough to go out.
Handed in the final 2 assignments foe my cert Ed.

Thursday
Washed my own hair today after laying in bed for a while.
Received e mail from my tutor that he’s marked first assignment and I’ve passed. Fantastic.
Mum took me out for a little while in the wheelchair just to get some fresh air.



Friday
At hospital today having tests to make sure that my bones haven’t crumbled any more due to my medication ive taken over the past years. they have just told me that i am lacking in vitamin D so ive just taken a large dose.